Facebook post from Dee Dee on October 14th, 2021

Hi Everyone! I have had the privledge to spend this week at Shepherd in Atlanta with my grandson Julian while he is working so hard to get better. This picture was taken by his Pulmonologist James who just told Julian that they would remove his trach early next week because his breathing is so
Much better. This is awesome news!!! This will make Julian feel so much more comfortable. Julian is working hard in PT and OT every day. He has some muscle movement is his left arm that they are trying to make stronger but this simply takes lots of time. Julian also goes to school here at Shepherd. His teacher told me yesterday that they are working with his school to keep him on track with his Senior school year which is very impressive. When Jenn left she told me not to let Julian lose any weight. I seriously do not think that will happen.because he has had a really good appetite this week. Today has been a better day with his neck pain. He seems to be feeling really good today. There is a new patient here at Shepherd, a 16 year old girl. Most of the patients that I have seen are boys (go figure). In a few Julian and I are going to take a spin to see if we can meet the new girl so Julian can welcome her to Shepherd. I have gotten so many messages asking if I am getting any sleep. Surprisingly I am because Jenn has done an amazing job in Turing a reclining chair into a comfortable little bed. Almost feels like a crib. Spinal cord injuries caused problems with regulating body temps. Sometimes Julian is hot so Jenn has left allot of blankets for
Me to cozy up in. Julian’s attitude amazes me every day. He talks about when I get better not IF I get better. He loves his friends at school. He loves all the people he worked with at Higher Ground. They called the other day and it truly made his day. He loves his community that he lives in. People have been so kind to all of us reaching out, checking on Julian, praying for him, sending gifts and words of encouragement. We all can’t thank you enough. We wake up day wanting to be better people ourselves wanting to make someone else’s day better because this has been truly and eye opener in how much goodness there is all around us!!! Thank you Thank you and Love you All!!!! Dee and Julian.
















Comments

Post a Comment

Popular posts from this blog

Mamma Bear

Image
Mamma Bear moment.  It’s sad that you feel like you must protect your child from words from important people who could have the ability to drastically make life exponentially harder for my son who tragically was injured in a car accident 3 years ago and was paralyzed from the neck down.  Life isn’t easy for him or us that take care of his every need.  In the heels of a terrible plane crash, to tell the world it was due to a program through the FAA that helps include people with physical disabilities was highly misleading to a population that won’t know or investigate the truth of the program or the cause of the accident.  Words are powerful and some’s carry more weight than others.  Implying that hiring people with a physical disability will compromises safety will increase the harmful stigma of a population that is already vulnerable and has the highest unemployment rates in America. Ever since Julian was hurt, we have tried to convince...
Read more
Image
 catching up on old info: 3 YEARS! Hard to believe we were thrust into this world 3 years ago. Many of you know how hard this year has been. Reality set in. Days are hard and life isn’t easy and I could write a book on all the ways the system isn’t there to help support and protect those individuals with disabilities. It makes me sad to think of all those less fortunate than Julian that don’t have loved ones advocating for them, and making sure they have the best life despite the circumstances. Despite what life has given Julian, his loving personality is always present even on the hardest days like today. Trauma is real and heavy, that day will always be so vivid in our mind. Thankful for all the messages sending love especially on tough days. It really does help get through the days. Last week Julian had an opportunity to go to a week camp for SCI in Rhode island put on by Empower SCI just for teenagers. Julian has never known a stranger and loved getting to meet new fr...
Read more

25 years!

Image
 July 31, 2024 Hard to believe it's been 25 years since Chris and I got married.  We were such babies back then and had no idea the ride we would embark on since that day.  I feel like we've lived more life in 25 years than some do in a lifetime.  We have moved 7 times, 4 different states, and 2 different countries.  Each time a new adventure that we looked forward to the new experiences and people we would meet.  We both put ourselves back to school to get our master's degrees while navigating life with work and children.  We had 3 beautiful children that I've been proud to watch grow.  Being a mom is one of my most favorite things and could not be happier with the family we have created together.  We've also experienced such profound loss and grief mixed in through the years, especially the last 5.  Some days I wonder how we are still standing, but we continue to push through and make it through another day always hoping that things wi...
Read more