OLDIES














































Comments

Post a Comment

Popular posts from this blog

Image
 catching up on old info: 3 YEARS! Hard to believe we were thrust into this world 3 years ago. Many of you know how hard this year has been. Reality set in. Days are hard and life isn’t easy and I could write a book on all the ways the system isn’t there to help support and protect those individuals with disabilities. It makes me sad to think of all those less fortunate than Julian that don’t have loved ones advocating for them, and making sure they have the best life despite the circumstances. Despite what life has given Julian, his loving personality is always present even on the hardest days like today. Trauma is real and heavy, that day will always be so vivid in our mind. Thankful for all the messages sending love especially on tough days. It really does help get through the days. Last week Julian had an opportunity to go to a week camp for SCI in Rhode island put on by Empower SCI just for teenagers. Julian has never known a stranger and loved getting to meet new fr...
Read more
Image
 Feb.8, 2025 Just wanting to catch up from the holidays.  We enjoyed Thanksgiving with the Stanford's and Christmas with my side of the family.  
Read more

July 15, 2024

Image
  A surprising sadness that has come with the fall out of spinal cord injury and its effect on our lives is how those closest to me have responded.     I’ve always tried to be a nurturer and someone that people can come to for support.     When I need it most, it seems no one is there but 1 consistent person.     I’ve even told at least 5 people that I have been struggling significantly and feel like those words just get left hanging in the air without actions that I would have provided my closest or even a stranger when presented with the same wording something more than “I’m sorry”.      It makes me question relationships and people in my life.     I don’t need a pat on the back, but simply time from others occasionally.     I feel so alone to deal with this life and at times it is so overwhelming I question if it is worth it.     I used to feel like this feeling was selfish and an easy way out.   ...
Read more