Feb. 25, 2022

I would do anything to keep these smiles coming! Julian and 2 of his best friends (Bre and David) went to the Morgan Wallen/Hardy concert tonight. When Julian was at Shepherd, tickets went on sale and he asked if he could get tickets. It’s the first thing he mentioned wanting to do with life moving forward at home. I immediately got on when they went on sale to do this for him. There is a saying that a mother is only as happy as her most unhappy child. Well today this mother gets to be happy. He and his friends had a wonderful time and seeing him smile is the best thing in the world. They are few in between now but cherish them when I see them. His friends are amazing people to help julian maneuver getting into a very large crowded area and chris is awesome to give up his evening to sit in the parking lot waiting for them to be ready to leave. Life isn’t easy but seeing him want to venture out in the world is a positive move in the right direction. It takes a lot of confidence to do this on his part and he’s been doing the best he can with what he’s been given. I pray for these good days to outweigh our bad days. It is a roller coaster of emotions, and know we will have the bad with the good. I hope he made memories with his best friends that will last a lifetime. And carry us through until the next wonderful day. The world can be crazy but it all comes down to raising caring kids that will be there for each other no matter how hard the circumstances! Love these kids and his friends that are with him on a dailybasis.












Comments

Post a Comment

Popular posts from this blog

Mamma Bear

Image
Mamma Bear moment.  It’s sad that you feel like you must protect your child from words from important people who could have the ability to drastically make life exponentially harder for my son who tragically was injured in a car accident 3 years ago and was paralyzed from the neck down.  Life isn’t easy for him or us that take care of his every need.  In the heels of a terrible plane crash, to tell the world it was due to a program through the FAA that helps include people with physical disabilities was highly misleading to a population that won’t know or investigate the truth of the program or the cause of the accident.  Words are powerful and some’s carry more weight than others.  Implying that hiring people with a physical disability will compromises safety will increase the harmful stigma of a population that is already vulnerable and has the highest unemployment rates in America. Ever since Julian was hurt, we have tried to convince...
Read more
Image
 catching up on old info: 3 YEARS! Hard to believe we were thrust into this world 3 years ago. Many of you know how hard this year has been. Reality set in. Days are hard and life isn’t easy and I could write a book on all the ways the system isn’t there to help support and protect those individuals with disabilities. It makes me sad to think of all those less fortunate than Julian that don’t have loved ones advocating for them, and making sure they have the best life despite the circumstances. Despite what life has given Julian, his loving personality is always present even on the hardest days like today. Trauma is real and heavy, that day will always be so vivid in our mind. Thankful for all the messages sending love especially on tough days. It really does help get through the days. Last week Julian had an opportunity to go to a week camp for SCI in Rhode island put on by Empower SCI just for teenagers. Julian has never known a stranger and loved getting to meet new fr...
Read more

25 years!

Image
 July 31, 2024 Hard to believe it's been 25 years since Chris and I got married.  We were such babies back then and had no idea the ride we would embark on since that day.  I feel like we've lived more life in 25 years than some do in a lifetime.  We have moved 7 times, 4 different states, and 2 different countries.  Each time a new adventure that we looked forward to the new experiences and people we would meet.  We both put ourselves back to school to get our master's degrees while navigating life with work and children.  We had 3 beautiful children that I've been proud to watch grow.  Being a mom is one of my most favorite things and could not be happier with the family we have created together.  We've also experienced such profound loss and grief mixed in through the years, especially the last 5.  Some days I wonder how we are still standing, but we continue to push through and make it through another day always hoping that things wi...
Read more