Facebook post from Sept. 20, 2021 from Jenn:


Not much exciting to report today on julians progress. I’ve been told that the spine recovers like a slug walking across the street. Holding onto patience during this process is very hard, especially for a 17 year old. I’ve hard a hard 24 hours, I haven’t heard what I’ve wanted to hear from the doctors, and I haven’t seen my sweet boy smile in awhile. I’ve had several meltdowns in the last 24 hours when crying is the only thing that I can do. (Maybe missing my support person,Kristen, to tell me it’s going to be ok inside these walls of shepherd). My friend in Connecticut always texts me to tell her something positive, so that’s what I’m going to focus on. I have the best friends ever that call and text me to check on me and listen to me when I cry to lend support. When I need it most. I also have a huge family that is walking this walk with me as well. Whatever needs to be done at home is being taken care of without having to ask. It’s pretty amazing that I had my family and Chris’s at our house within 12 hours of the accident. Even my sister managed to get a call at midnight and on a 5:30 am flight. I am so thankful for the support that it also brings tears to my eyes. I have family in Georgia bringing plenty of food and on call for any request I may have. There are several patients here without the support that we have. For that I will always be grateful. I’m now sitting beside Julian trying to get him to find some peace to sleep some. Listening to music helps in these times and just wish I could crawl in with him. Praying for rest so he can put in more work tomorrow.








Comments

Post a Comment

Popular posts from this blog

Mamma Bear

Image
Mamma Bear moment.  It’s sad that you feel like you must protect your child from words from important people who could have the ability to drastically make life exponentially harder for my son who tragically was injured in a car accident 3 years ago and was paralyzed from the neck down.  Life isn’t easy for him or us that take care of his every need.  In the heels of a terrible plane crash, to tell the world it was due to a program through the FAA that helps include people with physical disabilities was highly misleading to a population that won’t know or investigate the truth of the program or the cause of the accident.  Words are powerful and some’s carry more weight than others.  Implying that hiring people with a physical disability will compromises safety will increase the harmful stigma of a population that is already vulnerable and has the highest unemployment rates in America. Ever since Julian was hurt, we have tried to convince...
Read more
Image
 catching up on old info: 3 YEARS! Hard to believe we were thrust into this world 3 years ago. Many of you know how hard this year has been. Reality set in. Days are hard and life isn’t easy and I could write a book on all the ways the system isn’t there to help support and protect those individuals with disabilities. It makes me sad to think of all those less fortunate than Julian that don’t have loved ones advocating for them, and making sure they have the best life despite the circumstances. Despite what life has given Julian, his loving personality is always present even on the hardest days like today. Trauma is real and heavy, that day will always be so vivid in our mind. Thankful for all the messages sending love especially on tough days. It really does help get through the days. Last week Julian had an opportunity to go to a week camp for SCI in Rhode island put on by Empower SCI just for teenagers. Julian has never known a stranger and loved getting to meet new fr...
Read more

25 years!

Image
 July 31, 2024 Hard to believe it's been 25 years since Chris and I got married.  We were such babies back then and had no idea the ride we would embark on since that day.  I feel like we've lived more life in 25 years than some do in a lifetime.  We have moved 7 times, 4 different states, and 2 different countries.  Each time a new adventure that we looked forward to the new experiences and people we would meet.  We both put ourselves back to school to get our master's degrees while navigating life with work and children.  We had 3 beautiful children that I've been proud to watch grow.  Being a mom is one of my most favorite things and could not be happier with the family we have created together.  We've also experienced such profound loss and grief mixed in through the years, especially the last 5.  Some days I wonder how we are still standing, but we continue to push through and make it through another day always hoping that things wi...
Read more