Facebook post from Jenn on Sept. 22, 2021

Wednesday: we’ve had a couple rough days due to lots of pain and anxiety. This is me trying to me right beside him until he falls asleep. We have been playing calming music watching funny movies to keep calm. I can’t imagine what goes through his head at night, but together we are working our way through these uncharted waters. Hopefully, tomorrow will be a better day and we can figure out for to maximize what they are giving him so he doesn’t get this bad again tomorrow. We have had good news. His chest X-ray looks the best it has since this started over a month ago. We are staying off the vent from morning to midnight, and hopefully will extend it to the full 24 hours a day. If he can ween off the vent it will be a huge accomplishment ! Then who knows what else he may do for us. He does have some movement in the left arm (not a lot, but enough to have something to work at). I would love to show all the naysayers they were wrong to doubt a Stanford (or Colquitt). We are strong people that have a huge support system praying for julians miracle. I do miss my other babies and chris a lot. I can’t wait for us to be a whole family again. I know it’s going to look different but the love is still there. Julian is still here with us and we won’t stop fighting for him. That’s one of the things we push on the caregivers. This is a 17!year old that has a full life yet to live. I want anything and everything done to make sure his body heals from this. In the meantime, I am helping with math through FaceTime and pictures of me solving problems so she can figure if she’s right or not. It makes for busy nights when I’m doing everything for Julian but still needed at home with Alex and Lilly. I don’t know what I would do without the ability to stay in such contact. Baby steps we”re doing here while we are working on modify our house to meet julians needs. Lots to do before we bring him home but feel like we are deciding and conquering . Please keep prayers coming.





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