Facebook post from Jenn on October 7, 2021

Julian is feeling a little better today. Still having problems with nausea and vomiting but able to continue to get up and participate in therapies. We have another X-ray to check his stomach tomorrow. It has been getting better and fingers crossed it continues. We did have an X-ray of his neck and it looked good so that he no longer has to wear the next brace. He was very happy about that, but just going to be more sore because his muscles won’t have the support of the brace. We had some talks today about approaching the day with more positive thoughts. We are still going to have pain and discomfort, anxiety and stress, but he needs to push through and use each moment here for what we need. I got to sit with Julian and his Occupational therapist, Lindsay, she is wonderful! She started telling me about all the muscles she is working and instantly felt at ease because she knows her stuff! I value her for her education and dedication. I had messaged her after this session to just say thank you. She told me that as a mom and therapist she feels such responsibility to heal these kids and she will use every resource she has to recruit all the muscle movement she can before he goes home. That made me feel a great Peace knowing she was invested in Julian and would do everything she can. We still are so early since his accident and the video may seem like nothing to most but he is starting to use his left hand. He still needs support but believe he will continue to get stronger. I am very realistic with our diagnosis but not giving up hope. Another big thing this week is that they are letting the caregivers here come and go now. This is a picture of me from the outside of the fence. Kristen and I walked out on Wednesday. We don’t have cars here but we just turned left on Peachtree street to walk. I can’t tell you how strange it was to be able to walk outside again. I think it brought me some calmness after a stressful week. I understand why they needed to do it, but the strain is so hard. Not having the ability to go somewhere or touch family has been so hard. I’m grateful and thankful that this restriction has been eased.











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