Facebook post from Jenn on October 5th 2021

Being a parent is definitely the hardest job one can possibly have. The love for a child is indescribable until you experience it. Being the mother of a child with a horrible diagnosis is like hell on earth. You are having to be strong so that they continue to think positive. You have to show some tough love so that they continue to fight to overcome the hardest fight in their life, while balancing their emotions at the same time. I sit here and watch my sweet boy sleep and wish I could go back and change one thing about the night of his accident that might have changed his fate. Then I would be home getting them ready for school tomorrow and making sure homework was all done, bedtime routines and packing lunches. Instead I’m sitting in a hospital alone with him fighting that he gets the quality of care that he deserves. I have always treated each of my patients with kindness, warmth, empathy and the highest level of care I can provide. I have taught my students to do the same. We’ve had a rough week of mistakes that shouldn’t have happened and unfortunately he had to suffer because of them. (Staples not removed weeks ago causing pain, catheter pulled causing trauma, failure to treat symptoms for the last week and now we may be in a bad spot, drawing blood daily at 6 am everyday for weeks just because no one bothered to take initiative to ask why, no communication with physicians, and then my input is not needed or wanted). So not only is being a parent hard, but being in medicine is even harder and managing both sides. We were so happy to get him in one of the best spinal centers and feel like they don’t see any light in our tunnel. I personally see huge things that some may not have thought would happen. He is breathing on his own, he is eating by mouth, my Julian is still 100% here even though his body took a hit in his accident. I still live to see his smile, and can’t wait to get him home. I don’t know what the future holds for him but know I will not stop fighting for him and what he deserves. Sad that it’s quality care at the moment. #treatothershowyouwanttobetreated







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