Facebook post from Jenn on Dec. 10, 2021

I feel like I’m living my life like my kids saw life through social media. I always tried to remind them there was Instagram and there was real life. I try really hard to show the small bits of positives we’ve had over the last 3.5 months. I know no one likes the Debbie downer all the time. But behind each smile in my pictures came after lots of sadness, tears, doubt, Fatigue, And feelings of defeat. Chris and I have had lots of talks when tears are the only way to communicate, which being at home seems to be much more frequent than when we were at Shepherd. Reality has set it being home and reality sucks!! My son has been dealt a shitty hand for which we have no answers as to why. We do say we do not want this to define or destroy us. Not only do I work really hard to put on a happy face for Julian but for my other 2 children as well. I don’t want this to break their spirit as well. Julian is my pleaser and is doing so good being brave and strong, but I see his fear and sadness and it breaks my heart. Somehow we will strengthen and get through this together. I’m looking for people that will be on Julian’s team and want to be part of the solution. We hear this is your “new normal” now all the time which is another phrase I Hate! To say this is our new normal implies we are accepting this and gave up trying for more and better. I will never accept that this is his peak after this injury. Yes, we have mountains to climb and we may never get to the other side but we are going to try so hard.







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